Micah Peace – White Disabled Activists Combat Racism

April 8, 2:30-3 pm PDT on KPFA radio

White disabled activists combating racism against the non-white disabled community is the topic of this edition of Pushing Limits radio program.  Producer/host Eddie Ytuarte will interview Micah Peace, a co-coordinator of Disability SURJ, a chapter of the national organization Showing Up For Racial Justice.


SURJ is  “a national network of groups and individuals organizing white people for racial and economic justice.”


SURJ Activists Photo from https-//surj.org/our-work/surj-disability/

Micah Peace is an Autistic, multiply Disabled organizer, educator, and researcher from Louisville, KY.  Alongside their colleague Amanda Stahl, they are a lead Co-Organizer of Disability SURJ, which works to connect the dots between racist and ableist violence, and bring more white Disabled people into the movement for Racial Justice.


Jacob Lesner-Buxton helped produce this program.





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Advisory Committees – What Are They Good For?

Friday, March 25, 2:30-3 pm, PDT  at KPFA Radio


Christine Fitzgerald, Advisory Committees for VTA, the Santa Clara Valley Transportation Authority

Many nursing homes, transportation agencies, senior services, housing authorities and other groups that heavily impact people with disabilities have Advisory Committees. And, low income and disabled people are often asked to serve on them.


Are these committees just window dressing? Is a committee member like a wedding planner who’s only allowed to plan the reception centerpieces?


How can a disabled committee member make their committee more useful? Does committee work teach skills to influence governmental decisions? Do the people who sit on these committee end up doing staff work without getting paid for it?

Mr Aaron Morrow, Advisory Committees for VTA, the Santa Clara Valley Transportation Authority


In short, are Advisory Committees a valid route to positive change?



Today, we talk to four veteran Advisory Committee members with disabilities about their work on these committees. And, we air excerpts from Jacob Lesnor-Buxton’s article on this topic, “So The State of California Is Requiring Me to Listen to You People.”

Bonnie Elliott, Access Advisory Committee of the City of Santa Barbara

Our guests are:

Amanda Stahl from Kentucky’s Advisory Board for People with Developmental Disabilities and its Protection and Advocacy Board;

Christine Fitzgerald and Mr. Aaron Morrow from Advisory Committees for VTA, the Santa Clara Valley Transportation Authority;

Bonnie Elliott from the Access Advisory Committee of the City of Santa Barbara; and

Dani Anderson, board member of the State-wide Independent Living Council

Dani Anderson from the board of the State-wide California Independent Living Council.


Program Production Team:
Jacob Lesnor-Buxton: Interviewer, lead producer, conception, writer.
Adrienne Lauby: Host, editing
Mark Romoser:  Voicing of article excerpts, editing
Sheela Gunn-Cushman:  Editing

Posted in Activism, Adrienne Lauby, analysis & commentary, Community, Disability Organizations, Jacob Lesner-Buxton, Mark Romoser, Politics, Sheela Gunn Cushman, Story Telling - Disability | Tagged , , , , , , , , , , , , | | Comments Off on Advisory Committees – What Are They Good For?

So The State of California Is Requiring Me to Listen to You People

By Jacob Lesner-Buxton

Jacob Lesner-Buxton

“Jacob, help me understand I keep coming to you with all these great ideas, and you won’t bring them up to the advisory committees you are on. You keep saying it is not the right time, or the committee won’t deal with that issue. I thought you wanted to make an impact.”

Ah, that was Steve, a man about 60 who is a new California transplant and views me as a power broker in the community. For the past year, he has been giving me suggestions for projects that I could do to improve the conditions of those with disabilities in the county. Although he is passionate about these ideas, I am hesitant to bring them to the committees I work with for a variety of reasons.

First, Steve can be flakey. Often when I tried to work on his ideas, he didn’t get back to me. Another challenge with his ideas is they are often unclear.  If I felt unclear about his plan, then chances are the community would as well.  The last challenge is that Steve may have overestimated the power of advisory committees to create change.

For those who aren’t aware that many government agencies, community resources, and others have advisory committees made up of stakeholders to provide input into how that program operates. In California, many policies require an advisory committee to be formed at nursing homes, transportation agencies, etc.  Some bills require the creation of a new committee to advise on senior service projects or to monitor the implantation of a new program.

About 15% of my work is devoted to sitting on advisory committees or finding others to serve on them. In my experience, the role of the advisory committees varies greatly. Some committees meet regularly and take community input seriously.  Others feel like carefully staged press events that happen two or three times a year.

Steve had the impression that I had carte blanche to bring his ideas to the different advisory committees I was sitting on. In reality, my experience on some committees is akin to being a wedding planner who is restricted to only making suggestions about the centerpieces on the tables during the reception.

Recently, I was recently told that a topic I wanted to bring up as chair of a committee was inappropriate.  County staff seemed to have the final say over what my committee and other advisory committees could discuss.  I am sure I could have protested this decision, but it would take up much energy. Plus, I could get this issue addressed in other ways, such as starting a letter-writing campaign or getting a bunch of people to show up outside their offices.

People seem to see advisory committees as the end all be all or they think they are a complete waste of time.  The truth is somewhere in the middle.

Some of my disability rights advocate friends began planning for a particular advisory committee meeting two or three months out. They were convinced that if they could get a large crowd to an advisory board of an agency that deals with home care, the problems in that office will cease.  As someone who has been to many advisory committee meetings, it’s hard to imagine this kind of success.  It’s almost impossible to have a frank discussion about the department’s deficiencies in this – or, indeed, in any advisory committee I’ve been part of.

My friends will have the courage to speak their mind during the meeting, but there is a good possibility that someone in the committee will try to silence them.  I have noticed that on many advisory boards, some members feel a duty to defend the organization’s actions. This is understandable since some of these members communicate regularly with the department they advise.  They might see things differently than the public. However, I have seen instances where the zeal to defend systems has prevented necessary conversations from happening.

For instance, about five years ago, I participated in a focus group hosted by a committee that advises the California government on policies affecting those with developmental disabilities. At the beginning of the meeting, an advocate for families with disabilities started to testify about the issues affecting her community. After three minutes, the chair of the committee stood up, put her hand out, and said, “That’s it. I am not going to listen to you criticize our services for two hours.”

While I could understand if the chair asked the women to make room for others to speak, there were only five members of the public present. Furthermore, none of the others at the meeting seemed to have the urge to speak. The chairwoman’s outburst changed the tenor of the meeting.

Instead of discussing the problems affecting those with disabilities the focus group only made small talk about family and the weather in Santa Barbara.

I wonder if the chair decided felt obliged to defend the work of California institutions to further her career.  If so, she may have been off base.  Unless the meeting room was bugged, I don’t think someone from the governor’s office would have heard about the session.  And, if the governor at the time heard the woman criticizing his policies, I doubt he would have cared.

Once I was interviewed by this Governor’s staff about an appointment to a committee and they asked me to share my honest feelings about him. Despite sharing my frustration at his policies, I was still appointed to that committee.

I am often critical of who gets picked to be on what committee, as well as those who feel the need to defend government officials. My colleague from a different organization got chosen to be on a committee that addressed the needs of people with intellectual disabilities. Although I respected the person’s advocacy, there were dozens of others who I thought might be more be appropriate for the committee.

I notice that some people, including myself, tend to collect advisory committees like baseball cards. And, I have seen a hint of resentment among some advocates who see the same faces on every committee.  It might sound like I am looking for brownie points, but I would happily give up on my seat on many of those advisory committees. I believe that my voice is not unique, and thousands of others can bring what I can to the table. However, I know many other disability activists, particularly people of color, who I believe have unique voices and should be at those tables.

And there are others who feel their voice is more effective on the street than in a conference room.

It’s critical that those on advisory boards be honest with the public on the reality of what that committee can do.  When Steve comes with an idea, he isn’t happy when I tell him that I won’t be taking it to the Committee.  He isn’t happy about the ideological sacrifices I make to pay my rent or keep food on the table.  Still, he has a right to understand my thinking. Maybe there will be an issue where I am willing to do a type of advocacy that will put my job on the line.

In the meantime, Steve and others should understand that change has been created in spaces other than the conference room at 3 pm on the third Monday of every month (excluding December).

If I suggest that a client picket the agency I work for, I might be putting my job at risk.  But, I can refer that person to someone who could teach them how to advocate in a way that I can’t.  If directing clients to others for advocacy advice is not an option, I could downplay the significance of my own advisory committees’ power.

The best way I have heard advisory committees described was from two people who worked at different agencies a hundred miles apart.   They both told me that there was an advisory committee at the place where they worked. However, neither knew what the committees talked about when they met. They said that if I was interested in making changes, they could try and get me information.

These people hit the nail on the head when it comes to many  advisory committees. If these advisory committees really created social change, then employees who are active in their workplaces would know more about them.  These people’s ignorance about the committees shows how many  advisory committees are seen as a legal requirement rather than a catalyst for change

It may appear that I am bad-mouthing the advisory committee in this article. However, they provide insight into how government works and allow the public to see those who are running these systems.  If you know what is possible to achieve and have limited expectations, some of these committees can move the needle a few inches towards social change, especially when paired with other social justice work.

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“Golem Girl” with Riva Lehrer

Listen, Friday, January 28, 2:30 pm PST on  KPFA

Riva Lehrer is an artist, writer and curator who focuses on the socially challenged body.  She is best known for representations of people whose physical embodiment, sexuality, or gender identity have long been stigmatized.  Part of a vibrant Chicago disability activist community, her portraits include Carrie Sandahl, Alice Wong, Lennard Davis, Nadina LaSpina, and many other bright lights of the disability community.


Her memoir and audio book, Golem Girl, is a complex story of growing up with a visible disability, undergoing surgeries, finding a path to her artistic self despite a traditional art school, boyfriends, girlfriends, physical struggle, and the connection with a disability culture group that changed this Golem Girl forever.


Golem Girl is filled with the awareness of the political nature of disability.  It’s intensely personal observations and memories are illustrated with the bright colors of Riva Lehrer’s paintings.


Ms. Lehrer’s work has been seen in venues including the National Portrait Gallery of the Smithsonian, Yale University, the United Nations, the National Museum of Women in the Arts in Washington, DC, the Arnot Museum, the DeCordova Museum, the Frye Museum, the Chicago Cultural Center, and the State of Illinois Museum.


Awards include the 2017 3Arts MacDowell Fellowship for writing, 2015 3Arts Residency Fellowship at the University of Illinois; the 2014 Carnegie Mellon Fellowship at Haverford and Bryn Mawr Colleges; the 2009 Prairie Fellowship at the Ragdale Foundation. Grants include the 2009 Critical Fierceness Grant, the 2008 3Arts Foundation Grant, and the 2006 Wynn Newhouse Award for Excellence, (NYC), as well as grants from the Illinois Arts Council, the University of Illinois, and the National Endowment for the Arts.


By Riva Lehrer, Self Portrait

Her memoir, Golem Girl, is published by the One World imprint of Penguin/Random House in October 2020. Ms. Lehrer is represented by Regal Hoffman & Associates literary agency, NYC.


Ms. Lehrer is on faculty at the School of the Art Institute of Chicago, and instructor in the Medical Humanities Departments of Northwestern University.


​Adrienne Lauby produced and hosts the program.

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“Plain Jane – The Shockumentary”

Jane Hash

Today’s show features Plain Jane: The Shockumentary, a film by Jane Hash, who is anything but plain.

Join host Mark Romoser as he talks with Jane Hash.

Find out why it’s called the Shockumentary.
Spoiler alert: Mermaids are involved.

Find out why it’s called the Shockumentary.
Spoiler alert: Mermaids are involved.Jane Hask

From the Holistic Vitality Education Channel!

Subscribe to their channel on YouTube & the blog @ holisticvitalityeducator.blogspot.com
Stay connected on social media Twitter @JaneHashCNHP
Facebook https://www.facebook.com/janehashcnhp


Shooting for this documentary began in 2007 and it was released on DVD in 2013 via self-distribution. It made its way around the globe and was featured in the ReFrame Film Festival in Canada.

This documentary is accurately described as a “shockumentary” in that common notions about disabled people are turned upside down and backwards. Part interview, part music video, part animation, part reenactment, and a dream sequence, this film explores new territory in the realm of human experience; a triumph of the will as Jane overcomes obstacles and destroys popular myths.

Jane Hash was born with Osteogenesis Imperfecta, a condition which is manifested by extremely brittle bones. At birth, Jane had twenty-six broken bones and was not expected to live 3 hours. By the time she was in high school, she had broken 200 bones.

With a large dose of dark humor, this independent film is full of social taboos and cult-classic potential. It will make you laugh more than it will make you cry but most importantly, it will make you think. By example, Jane teaches viewers that acceptance of self and of others can pave the road to a fantastically outrageous reality that is full of adventure!

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Crisis and Support with Jim Van Buskirk

Jim Van Buskirk

Friday, November 5, 2021, 2:30 pm PST on KPFA radio

When an old friend went to the hospital and suddenly found his moderate disability had become both severe and life threatening, Jim Van Buskirk wanted to help.  Although he lived over a thousand miles away, Van Buskirk found a useful role in posting daily updates on a Caring Bridge site.  It was certainly emotional but becoming somewhat routine until… Jim found himself lying in a hospital bed too.

Jim Van Buskirk tells this unfolding story.


We also talk about Buskirk’s work with the Final Exit Network, a group of volunteers who educate qualified individuals in practical, peaceful ways to end their lives. They offer a compassionate bedside presence and defend people’s right to choose their own death.


Produced and hosted by Adrienne Lauby and Shelley Berman.

original air date: November 5, 2021

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High Support Needs? An Interview with Cal Montgomery

In 2005, Cal Montgomery burst into the disability movement as an intellectual who both made sense and was fun to read.  His three-part series on medicalization in the disability magazine, Ragged Edge, took book reviews to a entirely new level. 

Now, after years of writing, entertaining and educating us, Cal Montgomery comes to Pushing Limits.  He’ll be in conversation with Corbett Joan O’Toole to discuss some of the people whom the movement has most struggled to include. They’ll and ask the question, “What does disability rights look like for those with the highest support needs, anyway?”

Here’s a taste of Cal’s Montgomery’s writing:

“I’ve watched people — mostly people who consider themselves to be supporters of disability rights — react to me as my ability to control my body deteriorated again and I slowly slipped across whatever lines they were using to mark the boundary between “high-functioning” and “low-functioning.” A lot of them can’t handle it.  If they’re very polite they make some kind of excuse, but either way most of them are no longer in my life.” (“Defining Autistic Lives: A review of ‘Autism is a World,'” Cal Montgomery, Ragged Edge.)

“…while services for physically disabled people were to a significant extent organized around actual needs that people wanted met and so transition from large institutional settings to the community could be accompanied by significant gains in self-determination, services for people with I/DD tended to center on containment, control, and cost-effectiveness.”  (“Wolfensberger at the Door,” Cal’s Blog)

Cal Montgomery is a white, educated, trans, queer, autistic, physically disabled activist and survivor of long term institutionalization — and is someone often considered outside the reach of disability rights.  He is active on twitter @Cal__Montgomery

Corbett Joan OToole is a white queer disabled elder in that movement that has excluded Cal and others.

Mollie McLeod produced and hosts the program.

Cal Montgomery’s recent writing is available at Cal’s Blog and on twitter @Cal__Montgomery.
Cal’s older writing is available at Raggededgemagazine.com
Corbett Joan O’Toole’s book, “Fading Scars: My Queer Disability History”, 2nd Edition is available at Amazon

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Fighting Normalcy – Interview with Jonathan Mooney

July 2, 2021, 2:30 pm PDT, KPFA Radio

Jonathan Mooney tried to fit into the box of normalcy.  It cost him his education, his sense of self, his friendships and nearly his life.  In his opinion, “Normal Sucks.”

Jonathan lives with dyslexia and ADHD, and he’s dedicated his life to connections with other people who have been treated as not normal.  His latest book, Normal Sucks: How to Live, Learn, and Thrive Outside the Lines, explains the shame and waste in the assumption that normalcy is a goal to strive for.

“I want you to know, if those judges of normality wound you, like they have me and so many others, how to stitch yourself up and fight for a world that is not governed by those judges.”

Jonathan Mooney in conversation with Josh Elwood and Adrienne Lauby.
With technical support from Rod Akil, Denny Daughters, Sheela Gunn-Cushman and Lucretia Burton


I’m a dyslexic writer, speaker, and do-gooder who did not lean to read until 12 years old. I faced a number of low expectations growing up—was told I would flip burgers, be a high school dropped out and end up in jail. Needless to say there hopeful prophecies didn’t come to pass. Opposed to being a high school drop out I became a college graduate from Brown university with an honors degree in English lit; instead of flipping burgers I ended up writing books, the first of which I wrote at the end of the 23 as an undergrad; And instead of becoming an inmate I become an advocate creating organizations and initiatives that help people who get the short end of the stick.

I’ve won many awards for all of this —The Harry S. Truman fellowship for public services, Finalist for a Roads Scholarship, LA Achievement award from The Lab school of Washington where I shared the stage with Vice President Joe Biden—and been featured in/on HBO, NPR, The New York Times, NBC, Fast company, and many other media outlets. But what I’m most proud of is not that I proved some people how doubted me wrong—but that I proved the many people—my mom, a teacher named Mr. R, my wife Rebecca—right, not just about my potential but about the potential for all of us who live and learn differently.

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War, Wheelchairs & Housing

Support Disabled People; Prevent War

18-year old Mohammed, who said he lost both legs to a Syrian airstrike in Idib in 2012, is carried by friends on the island of Lesbos in Greece.  Both his friends and relatives accompanied him on his journey to safety, carrying him whenever needed.  Oct. 8,2015. (c) Zalmai for Human Rights Watch.  Three teenage boys walking down a road. One has his arms around the shoulders of the other two who are holding him up.  He has no legs.  One of the boys, who is carrying his friend, may have no arms.  Behind them, others are also walking.
18-year old Mohammed, who said he lost both legs to a Syrian airstrike in Idib in 2012, is carried by friends on the island of Lesbos in Greece. Both his friends and relatives accompanied him on his journey to safety, carrying him whenever needed. Oct. 8,2015. (c) Zalmai for Human Rights Watch.

The stories of people with disabilities are often lost in the midst of armed conflicts, seen as just another tragedy amid the horrors of war.  But a new paper by Human Rights Watch shows a pattern of harm and offers specific recommendations to mitigate the suffering.

Today, we talk about war and other current issues with our listeners.  If you live with a disability or are part of our disability community as a family member, care-giver or friend, call us at 1-800-958-9008.

Should the prevention of war be a top priority for the disability justice and rights movement?

What do you think about the controversy over a wheelchair accessible path to the Greek Acropolis?

Will housing desperation cause us to accept segregated housing developments?

And, how about that Sacramento rally on Tuesday for Single Payer Health care in California!

A black and white drawing of a man without an arm and both legs.  He sits in a wheelchair holding a phone to his ear.  An older woman stands behind him with her hand on his shoulder.
Injured in Russian wars

Eddie Ytuarte and Adrienne Lauby will be taking your calls.   They produced and host this program with thanks to Ann Garrison and Disability Scoop for research support.

Original Air Date: June 18, 2021

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Mental Disabilities, Mary Lambert’s Music & More.

Mary Lambert, cover of her latest album “Grief Creature”

Listen (29 min)
In this program we play music from Mary Lambert, talk some about being disabled and finding yourself in a yet another crisis, and give a big shout out to those of us with mental disabilities.   We also open the phones for listener calls.

You might know Mary Lambert from her work with Macklemore on the song “Same Love” or, as I call it, “My Love She Keeps Me Warm” or from her hit song, “Secrets”.  Her latest album, Grief Creature, she says, centers around trauma and mental illness.  She’s courageous, fun and a wonderful singer!

Due to the copywritten music in this program, this archived version will only be available at KPFA for 14 days.

Hosted by Mollie McLeod & Adrienne Lauby

Production help from Shelley Berman, Sheela Gunn-Cushman, Rod Akil and Jose Gonzalez

Original Air Date: May 7, 2021

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