Once more around the Jan. 6 insurrection at the Capitol Building- – this time through the eyes of disability.
The uprising threatened particular individuals in a building with a lot of history. Some of those individuals live with disability and some of that history is intertwined with accessibility struggles and successes.
Mitch Jeserich worked in and around the Capitol Building for several years as a wheelchair-using reporter. He joins us for a description of the physical structure of that edifice and some stories about what it was like for him to be inside the building.
We hear a clip of California Congressmember Jackie Speier who lives with PTSD because she was shot five times in an ambush in Jonestown. Representative Speier was in the capital gallery when the rioters breached the doors.
Support the deaf community’s call to replace Trump supporter Heather Mewshaw who has been hired as the ASL interpreter for the daily White House press briefings. Sign here.
If you are trying to get an appointment in Sonoma or Contra Costa counties for a covid-19 vaccination, try Optum Serve. Currently, appointments appear to be limited to those 75 or older.
This program comes surrounded with the insight, wit and jibes of our host, Shelley Berman. Descriptions of photos for those with screen readers are below.
Produced by Shelley Berman with help from Mark Romoser, Sheela Gunn-Cushman and Adrienne Lauby.
PHOTO DESCRIPTIONS and CREDITS Mitch Jeserich from a video by Sandy Sanders. A white man in a cap and heavy sweatshirt sits in a wheelchair in a public square. He has a short beard and a mustache.
A man from one of the many protests by the disability community. Quite a difference from the Confederate flag carrying insurrectionists! (Photo courtesy of ADAPT.org)
A white man sits, probably in a wheel chair. His yellow tee shirt reads, “Fascism Sucks”. This photo comes from one of the many protests by the disability community. Quite a difference from the Confederate flag carrying insurrectionists! (Photo courtesy of ADAPT.org)
A photo collection which compares how the Capitol police treated disability protestors during the fight to save the ACA (Obama Care). The four photos on the right show protesters being hauled out bodily and the two photos on the left show police being hands off. P.S. No one died during the disability protests. photo montage posted to r/disability on Reddit by u/NeuroCartographer
The U.S. Capitol. A floor plan which shows the central circular rotunda with the Senate Chamber on one side and the House of Representatives on the other. There are many side rooms, stairways and other features that are not clear on this diagram.
The sound byte from Jackie Speier is from an interview with Stephen Colbert, on The Late Show from CBS. January 28, 2021
Original air date of this program: January 29, 2021
Today we integrate some of the events of our nation into our disability routines. We’re nine days from an attempted coup at the Capital Building in D.C. as the pandemic rages and vaccine hope arises. Three callers living with disability contribute to the program.
One of our elder listeners with a severe disability, Mylene, speaks of her problem getting vaccinated. Ed, another listener, brings his experience in living with depression and working for candidates in Georgia. Ed talks about his disappointment that people allowed the victory in Georgia to be overshadowed by the doom and gloom of the Capital take-over.
And, Buffalo gives a witty word-playful description of the capital insurrectionists introducing the concept of “errorists.”
Shelley Berman’s commentary wraps her personal experience getting vaccinated with the information about the Capital riot which continues to be exposed.
Adrienne Lauby, Mark Romoser and Eddie Ytuarte contributed to this program.
Produced by the Pushing Limits Collective, with help from KPFA Board Operator, Rod Akil.
UpComing Events in the Disability Community
Martin Luther King Jr Birthday Celebrations
Weekend of Jan. 16-17 Sonoma County Celebration, Sunday, Jan. 17, 7-9 pm (Look on-line for other celebrations in your area – many national and local celebrations are planned.)
What is Mental Illness or What Is It Not
Join us for a free, online discussion group, the first in an educational series in the spirit of Judi Chamberlin called ‘Judi’s Room’, a collaboration between MindFreedom International and ‘I Love You, Lead On”
Wednesday, January 20 9:00 PM PST Pre-registration is required.
KARAYZY Past~Hopeful Future~Disability in 2020~DEEP breath~ Before the PLUNGE~Disability in 2021~Pushing Limits~ Not quite business as usual
We are honored and thankful to spend part of New Years Day with YOU!
Go ahead and make merry, but be ready to take note of upcoming issues and actions. Adrienne, Mark, Eddie and Sheela (maybe Josh and Shelley, too?) will talk, roundtable fashion about the hard times and delicious nuggets from this year…yes, there HAVE been delicious nuggets.
Also, a excerpt from “The Advantages of Having a Speech Disability” by Jacob Lesner-Buxton. (see full text below)
Listen in for some hope for the coming year and to prepare for the battles to come.
Produced by Sheela Gunn-Cushman. Round Table: Eddie Ytuarte, Mark Romoser, Sheela Gunn-Cushman & Adrienne Lauby
The Advantages of Having a Speech Disability
By Jacob Lesner-Buxton
“If someone offered me ten million dollars, I wouldn’t give up my disability.” I have used this line in many training sessions that I do for work. As insignificant as I think the line is, it has always seemed to get the most reactions from an audience. People with disabilities often tell me that they have never known someone that had so much pride in their impairment as I have. Even elders in the disability community are blown away by the scale in which I celebrate my identity.
However, that statement about not trading my disability for money is not entirely true. There is one disability that I might want a doctor to find a cure for me. I might even cash out my retirement to pay for the operation. The disability, for which I would be willing to cash out my retirement to fix, is my speech. For those who don’t know I have a disability that makes me harder to understand than most people. The disability has cost me many social and economic opportunities. It makes conducting business over the phone hard and it has caused an untold number of negative reactions from people laughing in my face to assumptions about my lack of cognitive ability. Rarely have I enjoyed hearing myself on tape or seeing myself in videos. Up until the age of seventeen, I had never said anything positive about my voice. While I have grown to love all the parts of my body, I still dislike the sounds that emanate from my mouth.
However, my speech impairment has taught me some great lessons that assist me in daily life such as:
People care more about your actions than your words
In my work, I attend a lot of government meetings and serve on several committees. A lot of these meetings involve politicians, spending 15 or 20 minutes before a vote trying to justify to the audience why they are making this decision. For example, I was at a meeting about banning army recruiters from high schools in my city, and a committee member who voted in favor of the ban told 18 minutes of war stories involving his family. I doubt that anybody called him up the next day and said “ Frank I. hated your vote but damn it you sure tell a good war story.
Few people care if a public official has sympathy for their cause if they don’t back up those words by passing legislation. I know that people have a hard time listening to me and therefore I only ask the questions I need to at meetings and I don’t spend an inordinate amount of time trying to appease both sides of an issue. If people want to hear how I made my decision, they can e-mail me. However, as of now, I have never been asked to provide an explanation for one of my decisions.
Another thing I typically don’t do at meetings is reiterate what another committee member says. I serve on committees with people who make the exact same comments one after the other. Again, since it’s challenging for others to focus on my speech, I prefer to bring up new points instead of rehashing what someone has said. Often, people on my committee reiterate because they want to join the chorus of those heaping praise on a government employee or program. While giving public acknowledgment is great, if I don’t have something unique to say, I keep quiet. Besides, the best way to give praise to government employees is by having short meetings that allow them to get home earlier.
Don’t try to force conversations
“Yeah“, ”Uh-ha”, and Wow”, are three examples of responses people give to let others know that they are not in the mood for a conversation. They could be busy or simply don’t want to engage with that person. Getting these responses makes me think the person is not understanding my speech. Therefore, I try to have conversations only when I can tell that the other person is engaged in what I am saying.
My system of trying to make sure people are up for conversations before talking isn’t perfect. Some times I need to tell my boss something when he’s busy and I prepare myself for getting an “uh-ha” and “ok “ response from him. Other times people do want to talk, but they can’t understand me so they do the “uh-ha” stuff. Often, they confess, that they can’t understand and get someone else to translate or find a different way to communicate.
Once I was getting the “uh-ha” treatment from a woman when I was talking about a cancer diagnosis that I had gotten earlier that day. Feeling perplexed by her reaction, I asked if she understood me. After hearing she did, I quickly shut up. I didn’t want to waste energy trying to get support from a person who had little interest in giving it.
It puzzles me how other men can carry on a conversion with someone who does the “uh-ha” and “ok” routine. Once a guy at my office was 45 minutes early for his appointment and waited in the lobby. A colleague of mine working in that area became the center of his attention. For forty-five minutes he rambled on nonstop to her responses of “uh-ha” and “wow”. While watching this interaction, I wondered if the man understood that his chatter wasn’t impressing my co-worker. Maybe he believed, as other men do, that through persistence he could somehow win her over. With my speech impairment, I know that if someone I am attracted to doesn’t respond to my game in five minutes, then there is a good chance she won’t reciprocate my feelings.
When speaking falls try other methods of communication
Many people with speech impairments discover tricks for getting help from others who might not understand us. For instance, when I have to take a taxi, I often print out a map of where I am going. I have been known to bring photos of the items I want to buy to different stores and write messages on my cell phone to show people who are having trouble understanding me.
Perhaps the most important skill in my arsenal to get people to understand me is developing scripts for my interactions with doctors, workers at the post office, bank tellers, etc. Like actors, I often rehearse these scripts before doing errands. I find that having a script is effective so that I don’t get tongue-tied when trying to make my requests.
Using scripts and props in everyday life has helped me tremendously. I notice when I forget to bring tricks like maps for the cab driver my frustration level increases. While I am waiting for a company to develop training on “how to understand Jacob”, at least I can get my needs met by doing a bad Charlie Chaplin impersonation.
Having a speech impediment keeps superficial people away from me.
Up until now, I talked about lessons that have a strong correlation to my speech disability. However, the next lesson may be tough to measure. I believe that having a disability has helped keep people who are superficial from trying to be my friend. I know that that statement is subjective as hell so let me explain.
First, about 90% of my friends have other people with disabilities in their lives. Their existing relationships mean that they have been exposed to people like me, therefore they didn’t appear to be nervous at our initial meeting, They also don’t care about what others think which is helpful since people sometimes stare when I’m out in the community. From my speech to my gait, I know that I don’t attract people who only want to associate with model types.
Even though it has taken me a while, I’m ok with not being the typical California pretty boy portrayed in the media. Moreover, I don’t want to try to open someone’s superficial eyes to the wonders of getting to know someone with a speech impairment. I spent too much of my life trying to make myself appealing to those people and ignoring the friends who were ready to accept me. Although I have conflicts with friends from time to time, I don’t feel that I attract very many individuals who exploit the connections they have with me. I know that many people with disabilities who are befriended by those who are interested in exploiting them and I feel fortunate to have such trustworthy people in my life.
I can use my speech disability to be a bastard to others.
For those who are reading this who are looking to be inspired, buckle up because this last lesson shows my devilish side. See I sometimes use my speech disability to get away with saying things to people knowing they can’t understand me. For instance, while attending a summer program in high school, I told one of the other attendees he benefits from systemic racism and class privilege. He had been bragging about his wealth saying that once women see his house and BMW, they can’t stop french kissing him. Sick of his bragging, I pulled him aside and told him he was privileged using word straight out of a Marxist study group. I prefaced my statement by saying “I know you not going to understand what I’m about to say.” After my speech, he thanked me.
Looking back I think the guy was overstating his wealth, but I felt satisfied for speaking my mind. There have been times where I have been in meetings with people who I found annoying, and I mumbled something to a friend about them. They couldn’t understand but my friends and I would extend devilish glances like we are passing notes in 7th grade. I still get a kick out of being able to talk crap and sometimes get away with it.
I hesitated about writing this article. From one perspective, a list of lessons one learns could sound self-indulgent and preachy, yet it could also be seen as encouragement for those who have speech impairments to take pride in their disability. As I mentioned, not all perks from having a disability will be universally seen as good. However, some might consider the more devilish perks as being small ways to screw with an ableist society.
Lists showcasing the government benefits of all types of disabilities should be handed out by hospitals, schools and featured on government websites. Doctors could present them along with flowers, sparkling apple cider, and a “congratulations your child is disabled” sign shortly after the baby is diagnosed. I know the idea of celebrating disability might seem jarring to some but it could be a change from the messages of doom and gloom that many doctors give parents. I am sure some families may enjoy this new approach.
A “congratulations you’re disabled” party should be repeated once every two or three years for the child and it should be thrown by his or her school district. While some might see having a party for being disabled another sign of society babying millennials, I would argue that there needs to be more investment in disability-positive activities. A local school district reportedly has an unspoken rule about not bringing up a student’s disability with them until they are four months away from graduation. While I have heard conflicting accounts about the existence of this policy, the fact that this rule could exist shows that institutions still aren’t comfortable with disability.
One of the results of this school district trying to cover up disability is that about 36% of its graduates who were in special education drop out of community college in their freshman year. Perhaps one of the keys to reversing that trend is to institute practices such as disability pride celebrations into the curriculum, rather than avoiding the disability issue until the last possible moment. While it might seem unusual to tell a student about some of the advantages of having a disability such as the ability to gossip behind people’s backs, it might get them laughing. Their laughter, the corny celebrations, and the lists might exist in a society where taking pride in one’s disability is the norm, not the exception.
Jacob Lesner-Buxton lives with Cerebral Palsy and his essay titled, “The Advantages of a Speech Disability,” was a 2020 highlight. Jacob is based in Santa Barbara where he is a System Change Advocate at the Independent Living Resource Center. You can find more of Mr. Lesner-Buxton’s writing on his facebook page and through the Berkeley Disabled e-group list.
Less than 1% of U.S. residents live in nursing homes*, yet over 30% percent of all COVID-19 deaths has occurred in these institutions. One hundred thousand people have died due to the coronavirus in various types of nursing homes.
These shocking numbers are raising big questions. And the biggest question is, will these deaths galvanize big changes in the care of disabled and older people?
For decades, our guest, disability activist Lydia Nunez, has sounded the alarm about ongoing nursing home abuse and the conditions that gave rise to this pandemic tragedy.
Listen in to hear Lydia’s analysis of these and other problems, and her solutions for better care for our disabled brothers and sisters. These who have routinely ended up in these institutions are now routinely dying of Covid-19. Something’s gotta change!
This hour-long fund drive special is produced and hosted by Mark Romoser and Adrienne Lauby. Thanks to Josh Elwood, Helen Walsh of “Diverse Disability Media” and Toby Edelman for assistance.
Lydia Nunez Landry is a disability rights advocate living in Houston, Texas. Her advocacy work centers on the rights and safety of institutionalized disabled and older people. She is a social worker and a certified volunteer long-term care ombudsman.
Lydia’s activism draws on years of study in disability, critical race, queer, and feminist theories. She’s the mother of two, a member of ADAPT and a board member of Not Dead Yet. Her rich life history includes a magna cum laude degree from the University of Houston-Clear Lake and emergency post-hurricane work along the Gulf Coast.
Facts and More about the Covid Crisis in U.S. Nursing Homes and the Neglect that Led To It. (Resources provided by Lydia Nunez)
2. 1 in 5 visits to the ER from a nursing home is the result of confirmed abuse (same report as above)
3. In the span of five years, the number of abuse deficiencies in nursing homes more than doubled with 42.6% of abuse citations classified as the highest level of severity. (Same inspector general’s report)
4. As of the last week of November, more than 100,000 people died of Covid-19 in long-term congregate institutions.
5. The US Government Accountability Office found serious problems in nursing home quality, including problems protecting residents from abuse and weaknesses in government oversight. Even when abuse was reported to the state, enforcement actions were not implemented. 58% of the abuse was perpetrated by staff.
6. Racial disparities in nursing homes are pronounced with BIPOC in the lowest rated facilities–according to U.S. Government’s Centers for Medicare and Medicaid Services. The nursing ‘home’ “The Resort” in Texas City, which is a facility with predominantly Black residents, gave residents (some without consent) ” hydroxychloroquine, a drug not approved for treating COVID-19″.
8. The nation spends $170 billion annually on nursing homes (this was before they were given 20 billion during the pandemic).
9. Reporting COVID cases and deaths (that is, nursing homes) wasn’t mandatory until June 2020. Despite reporting requirements, only 80% of nursing homes have complied. ————————————
*For the purposes of this article and radio program “nursing homes” is used as an umbrella term that includes many forms of long-term care as well as other congregant living facilities such as group homes.
Disability writer and teacher Kenny Fries discusses the plight of German people with disabilities during the Nazi era. At least 200,000 people with a wide range of disabilities were murdered in an attempt to cleanse “Third Reich” society. At the same time, disabled German war veterans were feted with honors by the Nazi regime. It was arguably the worst modern tragedy to occur to the disabled community.
“Unlike the Holocaust, there are no T4 survivors. We know about T4 and its aftermath mainly through medical records and from the perpetrators. . . That is the main reason I write about what happened to disabled people during the Third Reich . . . This is my way of bridging the silence, of keeping alive something that is too often forgotten.” Kenny Fries
This history should never be forgotten and Pushing Limits is pleased to have Kenny Fries fresh from a Fulbright Lecture titled, “Bridging the Silence,” about his Aktion T4 research. That research led to his video project “What Happened Here in the Summer of 1940?” and his forthcoming book “Stumbling over History: Disability and the Holocaust.”
Kenny’s work has appeared in The New York Times, Washington Post, The Progressive, Catapult, Los Angeles Review of Books, and in many other publications and anthologies. He wrote the Disability Beat column for “How We Get To Next“, and developed the Fries Test for disability representation in our culture. His work has been translated into Spanish, German, French, and Japanese.
Facing a transplant of both heart and liver, Christopher Bowers and his wife talk to us about massive anxiety, heart-felt gratitude and sustaining love.
In his 45 years, Christopher has squeezed every beat of life outta his congenitally-fragile heart. He’s living with congestive heart failure and a liver compromised by the many treatments.
Now, if the planets align, he will soon undergo a double organ transplant.
Christopher Bowers is a musician and father of a two-year-old son. After high school he worked with Positive Images, an LGBTIQ group for youth, as a straight ally and speaker. He went on to challenge his white privilege in an anti-racism group, become a social worker and advocate for homeless people in Sonoma County, California.
Now, his project is his own body. We talk about the cost, the logistics and the necessary support for such a massive undertaking. But, we focus on the mental and emotional mindset of this remarkable family. It’s not all hearts and flowers; it’s realistic trade offs. It’s putting aside individual needs at the same time fiercely, radically taking care of oneself. Impossible? Of course. And, yet… it’s the only way.
Produced and hosted by Shelley Berman with assistance from Adrienne Lauby.
If you would like to follow Christopher’s journey and his race to $75,000, go here. A tax deductible donation site is available here.
Stuttering is caused by differences in the brain and there’s no cure for it. What there is is significant stigma and judgment from others. Yet. . . All the same. . .
Bailey Levis says he loves to stutter.
Bailey Levis says he loves talking about stuttering, loves teaching about stuttering, and supporting people who stutter and their families. Bailey Levis says people who stutter are not broken and don’t need to be fixed. Instead, he says, they are brave and resilient.
This program is hosted by Josh Elwood and Sheela Gunn-Cushman. Production by Rod Akil, Sheela Gunn-Cushman and Adrienne Lauby.
Bailey Levis, M.S., CCC-SLP, is a Licensed Speech and Language Pathologist who stutters. He is the founder of the San Francisco Speech and Fluency Center, and has taught undergraduate and graduate level courses to budding Speech-language pathologists at San Francisco State University and California State University, East Bay. He has also provided trainings on how to work with stuttering to school-districts around the Bay Area.
During a pandemic, if you are a renter and can’t pay your rent, you don’t go directly to eviction. But, the current tangle of federal, state and local eviction moratoriums does not give most poor and disabled people the sense of housing security we need.
Christina Collins, a prominent eviction attorney, comes to KPFA to lay out the landscape these largely temporary measures. She will detail the strengths and weaknesses of the moratoriums and tell us how to stay in our homes even if we’ve lost much of our income because of the stay-at-home lockdowns.
Today’s program gives its producers the opportunity to be part of the fall fundraising marathon on venerable KPFA-fm (94.1)
Eddie Ytuarte, Shelley Berman and Adrienne Lauby co-host.
Christina Collins, is an associate attorney at the law office of Tobener Ravenscrott which has offices in Oakland, San Francisco and San Jose. She earned her juris doctor from Golden Gate University School of Law in 2005 and received her undergraduate degree in Criminal Justice from San Francisco State University in 2001.
Christina has counseled more than 1000 tenants on matters such as habitability, illegal rent increases, just-cause eviction protections, nuisance neighbors, and landlord harassment. She enjoys helping tenants understand their rights and advising them on the best course of action to take to enforce those rights. Christina has authored several landlord-tenant articles, including on the San Francisco Rent Ordinance, the Alameda Rent Ordinance, security deposits, right to repairs, landlord sexual harassment, mobile home tenancies, and breaking commercial and residential leases.
RENTAL ASSISTANCE IN EAST BAY Bay Area Community Legal Services 510 238-5091 Catholic Charities of the East Bay 510 768-3100
LEGAL SERVICES (Income qualifications) Asian Pacific Islander Legal Outreach 510 251-2846 Bar Association of Alameda County 510 302-2222 Bay Area Legal Aid (Rights Line) 888 382-3405 Centro Legal (East bay) 510 437-1554 East Bay Community Law Center 510 548-4040 Sonoma County Legal Aid, hot line 707 843-4432
Tenants Together (statewide organization, local referrals) 888 495-8020 Oakland Tenants Union 510 704-5276 www.OaklandTenantsUnion.org Help@OaklandTenantsUnion.org Alliance of Californians for Community Empowerment 510 269-4692 Alameda (city) Renters Coalition www.TheAlamedaRentersCoalition.org Berkeley Tenants Union 520 982-6696 Causa Justa/Just Cause, (East Bay) 510 238-5091 www.cjjc.org ECHO Fair Housing 510 496-0496 Eviction Defense Center (Oakland) 510 452-4541 serves tenants who have been served an unlawful detainer
Housing Rights committee of San Francisco 415 703-8644 Sentinel Housing (Oakland) 510 836-2687 Sonoma County Tenant Hot Line 707 387-1968 Tenants and Neighborhood Council 510 671-5747
GOVERNMENT RESOURCES Richmond City Rent Board 510 234-7368
CONSUMER ASSISTANCE Consumers Union (statewide) 415 431-6747
Jenn Peoples’ childhood was frightening and traumatic. As a result she’s faced terrifying demons of self-destructive behavior. Now she’s far along in recovery, not from her mental illness, but from the self-destructive behaviors that followed. Today, she is a dual diagnosis counselor at a peer support recovery center in downtown Santa Rosa, California.
The concept of centers run by and for people with chronic mental disabilities came out of the psychiatric survivors and mental health consumers movement and, in California, has been supported by the Millionaires Tax, Prop. 63 since 2004.
People like our guest often point to the support of peers and peer-run centers as one reason that their lives have improved. Some of these folks have a strong desire to give back by helping others in similar situations. Add training to that desire and you build powerful role models and community leaders like Jenn Peoples.
Covid-19, unemployment, the opioid epidemic and the West Coast fires have terrorized vulnerable people who were already struggling. Jenn Peoples tells us how all this looks for those she knows and describes how she and others, despite it all, are keeping their feet on Recovery Road.
Adrienne Lauby produced and hosts this program. Mark Romoser and Sheela Gunn-Cushman provided production support.
Jenn Peoples is a Peer Recovery Specialist who works for Interlink in Santa Rosa California. If you’d like to know more about Interlink or join one of Jenn’s groups, call (707) 546-4481 or go to Interlink Self Help Center’s website. They offer a warm line for emotional support. Sonoma County’s Behavior Health Department also offers a warm line at 565-2652 and San Francisco has a 24/7 warm line at 855-845-1415
Jenn also reminds us that there are many free Narcotics Anonymous and Alcoholics Anonymous meetings on line. In the north bay there are in-person meetings at the Alano Club in Petaluma and at one of the downtown parks in Santa Rosa. A phone can help ease the mind and keep you connected to support and you can often find free smart phones in Santa Rosa at a big blue tent outside the Food Max on Sebastopol Road or in the Coddington parking lot in front of J.C. Penny’s.
Finally, Jenn mentioned Smart Recovery an alternative to the 12 step programs. SMART Recovery is an international non-profit organization that provides assistance to individuals seeking abstinence from addiction. SMART stands for Self-Management and Recovery Training. The SMART approach is secular and science-based, using cognitive behavioral therapy and non-confrontational motivational methods. Like 12 step programs, their mutual support meetings are free of charge.